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Showing posts with label all star followup. Show all posts
Showing posts with label all star followup. Show all posts

Wednesday, 15 April 2015

All Star Followup – Staci Pursley

Staci Pursley lives in the quiet town of Atwater, California, just a few minutes’ drive from her hometown of Winton.  A friendly and youthful nurse with a beautiful family, you might assume that her compassion is something she learned in school or from working with families in need.  It’s hard to imagine her less than a decade ago as a 15-year-old starting her own battle with childhood cancer.

“In 2004, I was living with my parents in Winton when I was diagnosed with Ewing's Sarcoma, just a few days shy of my 16th birthday. I received treatments of chemotherapy during an 8-month span, as well as 6 weeks of radiation.  My mother and I practically lived at Family House on 10th Avenue during that entire time.”

While she was being treated at the hospital, Family House was able to provide a stable, comfortable place for Staci’s mom and twin sister Stefani to stay.  Having her family close by meant that Staci could focus on getting better, and look ahead to the future.
 Nine years after her diagnosis, Staci’s life is full and vibrant, and her own family keeps her on her toes.  “John and I have been married for 3 years, and we have two wonderful children – our 2-year old son Gage, and 6-week old daughter Elliott.  I'm very thankful for what Family House was able to provide for us during our time of need. Family House is truly a blessing.”

Click here to learn more about Family House families:
http://www.familyhouseinc.org/family-stories.html 



Wednesday, 18 March 2015

All Star Followup: Max Meierotto

Max and his parents first stayed at Family House for 3 months in 2011. They had come to San Francisco all the way from Vienna, Austria, so he could take part in a clinical trial for the treatment of Pelizaeus Merzbacher Disease, a very rare condition where the myelin sheath around Max’s brain deteriorates, causing significant motor function issues.

His mom, Stefanie, says of the clinical trial, “We were very, very happy about it, but of course we didn’t have a place to stay - and then Family House came in and gave us a bed.  There were very nice people to talk to and hang out with there. It was a place to just be home.”

Once a year for the next few years, Max returns to UCSF for checkups, including an EEG, an SSEP, an MRI, and all kinds of blood tests. “He’s 8 years old, and he’s having good progress with everything - it’s what we wish for.”

 When he comes to San Francisco now, he’s now longer the baby of the family. Stefanie recalls, “Last year in June, we had twin girls, healthy twin girls, and I’m not bored anymore. (Not that I was bored before, but now I learned what it means to be extremely busy!) They’re a big joy.

“In the beginning, it was a little bit hard for Max, because he was our prince for 8 years, and he had to learn to accept that there are other people that Mommy has to help with.  But he’s getting much, much better. Since the girls are getting older, and moving around more, he thinks this is hilarious, and enjoys them now quite a bit. It’s good for him - he’s learned a lot.”


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Click here to learn more about Family House families:
http://www.familyhouseinc.org/family-stories.html

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Wednesday, 11 February 2015

A Cancer Survivor Looks Back

What would you do if you found out your 5-year-old had cancer?

In February of 2000, Matt and Mary Ferrick noticed their son was limping, and they did what any parent would do - they brought him to the doctor. Scans revealed that a previously-undetected tumor in his stomach had now spread to his hip. Jay was rushed 100 miles from their home in Ukiah to UCSF to be treated for stage 4 neuroblastoma. Pulled out of kindergarten, he was admitted to the hospital, and his family stayed at Family House on and off for 14 months while he underwent chemotherapy, radiation, surgery, and a stem cell transplant.

"One thing I remember about the Family House is that I always looked forward to going.  Especially I remember because there were video games in the downstairs living room, and me and my little brother looked forward to playing video games because we didn't have them at home," recalls Jay, now 19 years old and a healthy sophomore at Chico State.

"Jay is doing very well, he lives a normal life, and is able to do everything that everybody else does.  He's been 12-13 years in remission now.  Of the type of cancer he had, 70% of the kids relapse, but Jay has been healthy since he completed his treatment. It's been a blessing to put it in the rear view mirror," says his father, Matt.

"Family House provided support for the whole family…  [For Jay's younger brother, Thomas,] having a sibling who's getting all the attention - some people really struggle with that, feeling they're in the background…. we've always tried to make them feel equal." Playing Nintendo in the Family House living room was a highlight for both boys. "[Thomas] thought it was a big thrill to go to San Francisco and see his big brother;" at only 3 years old at the time, he couldn't comprehend the seriousness of the situation, Matt recalls.

Jay's oncologist, Dr. Katherine Matthay, says that "Neuroblastoma is a very, very serious cancer that we find only in young children. More than 50% of children already have the cancer spread to their bones and their bone marrow at the time the cancer is detected." At the time of Jay's diagnosis and treatment, fewer than 15% of children survived metastatic neuroblastoma.

Dick and Anne Grace of Grace Family Vineyards are longtime Family House supporters, and have even awarded a grant to Dr. Matthay for cancer research. The targeted radiotherapy treatment that was developed from that grant is now one of the most active treatments for widespread and resistant neuroblastoma.  Dick says, "Annie and I had the extraordinary privilege of walking a portion of Jay's cure path alongside both he and his family, and it was there that we got the opportunity to see the courage and see the commitment and the resolve that he had in navigating this path."

Looking back, Jay hopes that his battle with cancer will be an inspiration to others who are currently undergoing treatment. "When we go to UCSF, we visit '7 Long,' the floor I was on, and I see all the kids there, and I hope that they see how I am, and hope that they can be cured and be a regular kid like me."

We are delighted that the Ferricks continue to be part of the Family House family!

Follow us on Facebook to see the latest on some of our amazing families:  http://facebook.com/FamilyHouseSanFrancisco

Click here to learn more about Family House families:
http://www.familyhouseinc.org/family-stories.html

Sign up for our newsletters to stay in the loop on all Family House news: http://www.familyhouseinc.org/newsletter.shtml#newsletterform