Wishing you Peace, Love, and Hope

Manuel spent the first 10 weeks of his life in the hospital and at Family House. This 5-lb miracle baby was born with leukemia, and at only six days old, he underwent heart surgery to close a hole in his heart. This was followed by chemotherapy to treat his cancer. The day after this photo was taken, his parents, Patty & Rosendo, would bring him home for the first time.

Please donate today so that parents like Patty and Rosendo can focus on what matters most - their baby's health:  https://familyhouse.ejoinme.org/holidaymiracles

Mighty Mason – Looking Back

Mason H and his family stayed at Family House after his initial diagnosis of Crohn’s Disease, an autoimmune disease. Family House talked with Mason’s mother, Sara:

FH: What were your first memories of learning that Mason had Crohn's Disease? 

Sara: His initial diagnosis was Crohn's, but then the immunology department at UCSF did some testing on him, and they told us there's a very rare chance that he has a genetic disease called IL-10 Receptor Deficiency. He's the tenth noted case in the entire world. That's how rare it was, but the disease mimicked Crohn's. His GI tract was attacking itself basically. He was always in a lot of pain. 

It was a long road just to get to that diagnosis. Before we just thought this is something that he was going to have to live with and deal with. Then they told us that there was a cure, and the bone marrow transplant should take care of it. It was incredibly frightening, but we also saw a little light at the end of the tunnel.

 

FH: What was the most challenging aspect of those early days?

Sara: As a parent, the one thing that you want to do for your children is to protect them and help them, and there was just nothing we could do. We couldn't fix the problem ourselves, and that was just the most frustrating thing. Not knowing exactly what it was, and just watching him in pain all the time. It was incredibly hard. It tested our faith very, very much. 

FH: How did you first discover Family House?

Sara: One of the social workers in the hospital had mentioned it, that Family House specifically helps kids who are immune-compromised, which was what we’d need post-bone marrow transplant.

It was nice to see a place that had all of the comforts of home. Everybody was really helpful, and friendly, and very accommodating, especially Paul in the front office – he was just so warm and friendly. I remember when we were waiting outside and Mason was really, really sick. Paul came out and was really helpful and tried to calm us down. He was like that the entire stay. He checked on us. He always asked us how we were doing. He gave Mason a teddy bear right before we left.

We wouldn't have been able to do it without Family House, honestly, because we were there for quite a while after his transplant and because we live four and a half hours away in Reno. They needed us to be close because we had to do blood work every three days. It was a blessing that Family House was there.

We stayed at Family House for five weeks post-transplant before we got the clear to come back home. And we'd had a few stays prior to that as well, when we were doing all the pre-transplant testing. You need quite a few trips back and forth. We always had a place to stay.

FH: Was there anything that surprised you when you first started staying at Family House?

Sara: They have pictures of some of the kids that have stayed there, and it makes you realize that you're going to make it through. You see the kids. Some of them have sent in pictures afterwards once they’re well. I think that was a pleasant surprise, just to be able to see their journeys, and know that there is an end to it.

One of the hardest things - there's really no one else that truly understands what you're going through unless they're going through it, or have gone through it. People can sympathize, but there are very few people that can actually empathize with you. Meeting some of the families, and hearing their stories, it was definitely helpful. But when you have people there that know exactly what it is, it's somehow comforting.

FH: How is Mason doing now?

Sara: He's doing amazing! It's like nothing ever happened. He's four, and he had his first organized sport this year. We put him in soccer. He's just blossoming. He's growing, and he's just really happy. He's like the happiest kid ever.

FH: Is there one thing that you wish other people to know about Family House?

Sara: Just that it really is home away from home when you're in that kind of situation. It's more comfortable than staying at a hotel. You have all of the comforts of home. You've got your kitchen there. You've got your living room. There are tons of movies and toys to play with. They have volunteers going in and out of there cleaning the place all the time. It's incredibly clean. It's just a huge blessing that it's there. It's one of those places I wish more people knew about, and contributed funding to. I try to tell as many people as I can about it. There are people who want to do their end of year tax deduction, giveaways and I'm like, "Donate to Family House. They're really actually helping families."

To donate to Family House, please visit: https://familyhouse.ejoinme.org

Manuel, A Miracle Baby

Manuel spent the first 10 weeks of his life in the hospital and at Family House.

This 5-lb miracle baby was born via emergency c-section with Transient Myeloproliferative Disorder, a type of Leukemia that affects children with Down Syndrome. At only six days old, he underwent heart surgery to close a hole in his heart. This was followed immediately by weeks of chemotherapy to treat his cancer.

"Manuel was in and out of the hospital for the first two months of his life. He had fluid building around his heart that wouldn't drain on its own. He got a lung infection and had to be on oxygen because his lungs weren't working properly," says Patty, Manuel's mother.

The day after the above photo was taken, his parents, Patty and Rosendo, would bring him home for the first time.

"At Family House, everyone was friendly and open, everyone was willing to help. It's nice staying there - a little home away from home."  Now 8 months old, Manuel can do the things that other babies can do, like hold his own bottle, roll over, and sit up on his own. He's starting to talk, too.

"His heart and pulmonary counts are great. He's doing what normal babies do; we're very happy, we're very proud of him."

Please donate today to Family House so we can help babies like Manuel have a happy, healthy future: https://familyhouse.ejoinme.org/holidaymiracles 

Click here to learn more about Family House families:
http://www.familyhouseinc.org/family-stories.html 

#GivingTuesday

It's #GivingTuesday!

Make a statement! Give Dignity to a family in need by donating to Family House: http://ow.ly/rpzA0

Joy Littlesunday & Holiday Wishes

Joy has seen all of her first year milestones at Family House—first Christmas, first steps, first birthday.

Joy Littlesunday was just 3 weeks old when she was diagnosed with an autoimmune disease (SCID) that runs in Native American populations.

Rushed to UCSF Benioff Children’s Hospital from Cameron, Arizona and less than two months old, Joy had a successful Bone Marrow Transplant. Over the past year and a half as baby Joy continues her treatment and recovery, Joy and her mother, Tina, have been staying at Family House. Separated by miles but not by love and support, Joy’s father Jarvison and siblings make the trip as often as possible.
 
 “Without Family House, I don’t know what we would be doing.  We miss home and being a whole family. Luckily, Family House has provided us the comfort and care to help us get through these challenging times. Family House has helped my daughter celebrate the truly precious child that she is.” - Tina Littlesunday

Help families like Joy's experience all the comforts of the holidays at their home away from home, Family House: Donate today! http://www.familyhouseinc.org/holidaywishes

Happy Thanksgiving!

Happy Thanksgiving from all of us at Family House!

Volunteer Spotlight: Paul & Leslie Radcliffe

Family House volunteers are some of the most dedicated, understanding, and caring individuals there are! Two amazing volunteers who have come to Family House are husband and wife Paul and Leslie Radcliffe. Paul and Leslie have become regulars several times a month at Family House by hosting monthly family dinners, helping on Saturday volunteer days, and providing event support at Family House fundraisers.

Leslie Radcliffe began volunteering with Family House when she took over managing an online group called Giving Tree through the website Meetup.com. Leslie plans and organizes different volunteer opportunities with non-profit organizations throughout the city. In addition to helping at Family House with dinners and Saturday activities, she and Paul have volunteered at Family House’s Young Professional Advisory Council’s 1st Annual Shipwrecked boat party in 2012. With volunteers such as Leslie and Paul, the event raised over $17,000 for Family House. Leslie will also be volunteering at the Bubbles & Bling event in November 2013.

Thank you so much to Leslie and Paul for your dedication to the families staying at Family House. You thoughtful meals and help at events and on the weekends enable Family House to continue to provide the services we offer! We are so lucky to have such amazing community support!

Get involved with Family House! Learn more at http://www.familyhouseinc.org/volunteer.html 

Giving Comfort

Family House is a proud distribution partner of Giving Comfort, a program that provides free "comfort kits" to cancer patients nationwide. These wonderful kits are tailored to the needs of cancer patients, with goodies like a warm blanket, a stuffed animal, games, crayons, and animal crackers - items designed to help the physical and emotional comfort of patients while they go through the unpleasantness (and boredom) of cancer treatment. Thank you, Giving Comfort, for sharing love and coziness to kids in need!


Sign up to learn more about Giving Comfort at: http://www.givingcomfort.org/

UCSF Mission Bay Day in the Life Simulation

I don’t think anyone has ever had this much fun in a hospital!

To help the doctors, nurses, and support staff get ready for the opening of the new UCSF Hospitals at Mission Bay, last week was the first of several “Day in the Life” simulations, where volunteers came together as patients and family members in real-life scenarios.  Family House staffers (and about 30 other volunteers) got to check out the new hospital, be pretend patients and parents, work with our partners at Child Life, and even got to see the helicopter (Bear Force One) take off from the helipad. We’re so excited about all the ways that this new facility is going to be able to serve thousands of Family House families every year!

Click here to read about the new Nancy & Stephen Grand Family House that is currently under construction, just blocks from the new UCSF Benioff Children's Hospital at Mission Bay:  http://www.familyhouseinc.org/mission-bay.html

Staff Spotlight: Susan Neff

How did you come to be at Family House?

In 2006, I was introduced to Family House by a Kathleen Toney, who was Board Chair at the time. I knew her as a friend and from community relations at our church in San Rafael - St. Raphael’s Church. Alexandra, the Family House CEO, had expressed desire to hire a development person for Family House. Kathleen directed Alexandra to my work at St. Raphael’s, where I was their Development Director. Alexandra and I met each other at Kathleen’s home and hit it off perfectly! We have a lot in common which then led to my working at Family House starting in July of 2006.

How has Family House changed since you first started?

Family House has grown—exponentially. In 2006, we only had one Volunteer Coordinator - part-time - and we didn’t have much of a database. We started with Donor Perfect (our old database program) soon after I joined the Family House team. We had no website, no Facebook following, and we just had the one small room for the three of us in the business office. We had about five people on staff and now we have more than doubled in size. Our database, donors, and families served has quadrupled in numbers; our general operating budget has expanded from under one million to [when we get to Mission Bay] 2.5 million. Our endowment has developed from 1.3 million to now over 5 million dollars.

What are some of your favorite Family House memories?

One of my favorite memories is when we used to all be in the small office, and one of the families staying here had a set of twin girls and a boy, and the kids would get so bored they would come down to the office and help us file. We were so behind on our filing that the kids would come help us, but in order to file, you have to know the alphabet! Since that was a little difficult for them, I made a poster for the kids to use as a reference, and it was so adorable. This particular family was here for months and it was just precious that the kids came down to the office to help us. My favorite administration memories come from kids who are staying with us coming down and hanging out with us in the office. 

 Contact Susan at http://www.familyhouseinc.org/staff.html