Wishing you Peace, Love, and Hope

Manuel spent the first 10 weeks of his life in the hospital and at Family House. This 5-lb miracle baby was born with leukemia, and at only six days old, he underwent heart surgery to close a hole in his heart. This was followed by chemotherapy to treat his cancer. The day after this photo was taken, his parents, Patty & Rosendo, would bring him home for the first time.

Please donate today so that parents like Patty and Rosendo can focus on what matters most - their baby's health:  https://familyhouse.ejoinme.org/holidaymiracles

Manuel, A Miracle Baby

Manuel spent the first 10 weeks of his life in the hospital and at Family House.

This 5-lb miracle baby was born via emergency c-section with Transient Myeloproliferative Disorder, a type of Leukemia that affects children with Down Syndrome. At only six days old, he underwent heart surgery to close a hole in his heart. This was followed immediately by weeks of chemotherapy to treat his cancer.

"Manuel was in and out of the hospital for the first two months of his life. He had fluid building around his heart that wouldn't drain on its own. He got a lung infection and had to be on oxygen because his lungs weren't working properly," says Patty, Manuel's mother.

The day after the above photo was taken, his parents, Patty and Rosendo, would bring him home for the first time.

"At Family House, everyone was friendly and open, everyone was willing to help. It's nice staying there - a little home away from home."  Now 8 months old, Manuel can do the things that other babies can do, like hold his own bottle, roll over, and sit up on his own. He's starting to talk, too.

"His heart and pulmonary counts are great. He's doing what normal babies do; we're very happy, we're very proud of him."

Please donate today to Family House so we can help babies like Manuel have a happy, healthy future: https://familyhouse.ejoinme.org/holidaymiracles 

Click here to learn more about Family House families:
http://www.familyhouseinc.org/family-stories.html 

Healthcare Hospitality Week from July 20th-26th!

Family House is partnering with the Healthcare Hospitality Network (HHN) for a week of awareness about the work of healthcare hospitality houses. HHN is a national coalition of nearly 200 healthcare hospitality houses that do work similar to Family House across the country, providing a home away from home for thousands of families each year.

In celebration of Healthcare Hospitality Week week, Family House is pulling out all the stops, including a catered Sunday brunch for families, a staff personal development day, an Open House for UCSF doctors, social workers, and employees, and a special Board Member lunch.

We are proud to be part of the Healthcare Hospitality Network, and to be celebrating the work that our partners do nationwide!

Learn about the caring staff at Family House:  http://www.familyhouseinc.org/staff.html

Maddie’s Journey, by Jenny DeHart

My daughter, Madison, was 13 when she was diagnosed with cancer.  It was June of 2011 and I took  3 of my children to the doctor to get their Whooping Cough vaccination.  While we were there and after the Dr. left the room, I asked the nurse if it was ok for Maddie to have the shot if she had whooping cough already.  When she went out to ask the Dr. he advised us to go to the ER before having the vaccination just in case.  I waited a few hours and we went after dinner, around 7:30 that night.  After 2 hours and chest x-rays, we found out that Maddie had a massive tumor in her chest behind her right lung, and as it grew it was pushing on her lungs and causing the cough.  We knew within two weeks that the tumor was cancerous, and so our journey began.

On August 5, 2011, Maddie had what we refer to as her "big surgery".  It was a scary day for me, as things drastically changed the day before when we went for her pre-op appointment.  At first I had been told that they would be removing the tumor from her side, under her arm, and no scar would show, and that they were allowing 5 hours for her surgery.  During the pre-op, I was informed that the surgery now was scheduled for the whole day, and that the tumor was wrapped around the arteries to her head and right arm, as well as the nerves to her diaphragm and vocal chords.  They also let me know that they would be opening up her chest to get it out.   I was horrified and they went further in telling me that if they removed the whole tumor, they would have to remove her right arm and she would not have a voice anymore.   I didn't have time to process any of this at all, she was going in the very next day.

About four hours into the surgery, the Dr. called me in the waiting room and told me that the MRI was wrong and the tumor was NOT wrapped around all those important arteries and nerves!!  That was our first miracle.  When I saw my sweet Maddie 6 hours later, she was in ICU with every tube imaginable connected to her, but I saw her right arm, and about 20 minutes later I heard her sweet voice, and I knew that she was going to be ok.

Eight days later, when she was discharged from the hospital, and we began our two hour drive home to Turlock, California.  We were an hour and half away from home, and I received a phone call from her oncologist at UCSF with more devastating news.  The pathology report had come back on the tumor and it showed a very aggressive cancer which indicated that Maddie would need to have chemo and radiation.  They gave her a "small" break after her "big surgery" of one month, before she had surgery to insert a port into her chest, and she began chemo that same day, September 6, 2011.

This is when our second miracle occurred.  We were referred to Family House and they became our second home for the next 6 months.  I say "they" because the people of family house made us feel as though we were home.  The first person we met was Kara.  She did our orientation and had nothing but a smile on her face the whole time!!  She was our first contact in our "new home".  Subsequently, meeting everyone else, John, Joe, Greg, Amy and now Karen,  was amazing!!  Family House became our home, and the people who work there, and the families that stay there are who made that happen.

We needed that miracle because Maddie and I were separated from the other children for the majority of 6 months.  It was very difficult on our our little family.  The staff was so consistent through support, from activities for Maddie, everything they provided in the house, and even just basic conversations, or simple smiles and hugs that helped us get through our day.  They were always encouraging us and always there for us when we needed them the most!  They MADE Family House a home for us, not just a house.

Our third miracle came when the Doctor declared that Maddie was cancer free on February 13, 2012.  She then had her port removed on Valentine's Day.   The only thing that was bittersweet about that news, was that we had to go to our real home.  Of course we WANTED to go home, to reunite with the other kids, but leaving Family House was so hard.  They were by our side through the darkest time in our lives and we had to leave them.

Next week it will be 2 years since Madison was declared "Cancer Free".  She is 15 years old now and thriving in school, actually in all aspects of her life.  We have been given the opportunity to be able to stay at Family House periodically over the past two years for her check ups that will continue for 3 more years, regularly.  It feels good when we get to "go home", and know that we will be welcomed and loved by all our "family" there.

Follow us on Facebook to see the latest on some of our amazing families:  http://facebook.com/FamilyHouseSanFrancisco

Click here to learn more about Family House families:
http://www.familyhouseinc.org/family-stories.html 

Sign up for our newsletters to stay in the loop on all Family House news: http://www.familyhouseinc.org/newsletters.html#newsletterform 

Cabernet for Connoisseurs 2014: A Letter from Dr. Art Ablin, Family House Founder

Dear Karen, Neil and the 2014 Cabernet Committee:


What a wonderful event!!!

We raised a lot; I don’t know exactly how much or if it was more or less than last year’s Cabernet, but that doesn’t make it any less spectacular than it was.  It was the best.  There is nothing anyone can put into words that describes the excitement there, gobs of beautiful young volunteers opening doors and giving directions,  the swizzling glasses and smacking lips in the wine tasting rooms, the careful and orderly arrangement of the displayed silent auction items and the constant, hum-drum pace of the auction.  The talks that Neil, Alexandra, and Dick Grace gave so eloquently brought home the Family House Mission and of course having the Ferrick Family there with young Jay’s presence on the stage left no doubt about what the evening was for. I know we raised over $500,000 on people just raising their numbers, to say nothing of the rest of the wine and other items.  It was absolutely the best!

Congratulations to all who had anything to do with this spectacular event.  Anyone there and all those who were not able to make it, can not help from being so proud to be a part of Family House.  We may not be the greatest, but one thing for certain:  there are none better.

Thank you Neil Committee and all the many others that made this possible.

Debbie and Art Ablin

Check out the event photos from this momentous night: https://www.facebook.com/media/set/?set=a.10153810632270277.1073741990.148667470276&type=1

Click here to find information on upcoming Family House events: http://www.familyhouseinc.org/events.html

A Cancer Survivor Looks Back

What would you do if you found out your 5-year-old had cancer?

In February of 2000, Matt and Mary Ferrick noticed their son was limping, and they did what any parent would do - they brought him to the doctor. Scans revealed that a previously-undetected tumor in his stomach had now spread to his hip. Jay was rushed 100 miles from their home in Ukiah to UCSF to be treated for stage 4 neuroblastoma. Pulled out of kindergarten, he was admitted to the hospital, and his family stayed at Family House on and off for 14 months while he underwent chemotherapy, radiation, surgery, and a stem cell transplant.

"One thing I remember about the Family House is that I always looked forward to going.  Especially I remember because there were video games in the downstairs living room, and me and my little brother looked forward to playing video games because we didn't have them at home," recalls Jay, now 19 years old and a healthy sophomore at Chico State.

"Jay is doing very well, he lives a normal life, and is able to do everything that everybody else does.  He's been 12-13 years in remission now.  Of the type of cancer he had, 70% of the kids relapse, but Jay has been healthy since he completed his treatment. It's been a blessing to put it in the rear view mirror," says his father, Matt.

"Family House provided support for the whole family…  [For Jay's younger brother, Thomas,] having a sibling who's getting all the attention - some people really struggle with that, feeling they're in the background…. we've always tried to make them feel equal." Playing Nintendo in the Family House living room was a highlight for both boys. "[Thomas] thought it was a big thrill to go to San Francisco and see his big brother;" at only 3 years old at the time, he couldn't comprehend the seriousness of the situation, Matt recalls.

Jay's oncologist, Dr. Katherine Matthay, says that "Neuroblastoma is a very, very serious cancer that we find only in young children. More than 50% of children already have the cancer spread to their bones and their bone marrow at the time the cancer is detected." At the time of Jay's diagnosis and treatment, fewer than 15% of children survived metastatic neuroblastoma.

Dick and Anne Grace of Grace Family Vineyards are longtime Family House supporters, and have even awarded a grant to Dr. Matthay for cancer research. The targeted radiotherapy treatment that was developed from that grant is now one of the most active treatments for widespread and resistant neuroblastoma.  Dick says, "Annie and I had the extraordinary privilege of walking a portion of Jay's cure path alongside both he and his family, and it was there that we got the opportunity to see the courage and see the commitment and the resolve that he had in navigating this path."

Looking back, Jay hopes that his battle with cancer will be an inspiration to others who are currently undergoing treatment. "When we go to UCSF, we visit '7 Long,' the floor I was on, and I see all the kids there, and I hope that they see how I am, and hope that they can be cured and be a regular kid like me."

We are delighted that the Ferricks continue to be part of the Family House family!

Follow us on Facebook to see the latest on some of our amazing families:  http://facebook.com/FamilyHouseSanFrancisco

Click here to learn more about Family House families:
http://www.familyhouseinc.org/family-stories.html

Sign up for our newsletters to stay in the loop on all Family House news: http://www.familyhouseinc.org/newsletter.shtml#newsletterform

Gratitude

A personal note from Joey Kotfica, Social Media Coordinator:

I'm still "the new girl" at Family House - I've only been on staff since February 2013.  I've grown so much this year - sharing the joys and sorrows of the families who stay here. Our offices are in the same building, and so, we will have morning coffee with parents, or take a little foosball break in the living room with some of the kids in the afternoon. I've gotten to know and admire so many people who pass through our doors: the families for their strength; the patients for their courage and optimism; the volunteers and donors for their generosity of time, talent, and treasure; and my amazingly compassionate co-workers.

The air these last few weeks here at Family House has been a little different - more energized. The phones and doorbells are ringing, we're getting emails, cards, and social media messages from so many people wanting to know how they can help.  We're getting messages of gratitude from our families in every form possible. Last week, a young couple who have been staying at Family House regularly all year came downstairs, and as one of them started to say thank you for the services we provide, she started crying, unable to speak her words of thanks. (So of course, I started crying with her.)

I've known for years what a special place Family House is, but it hasn't been until this year that I've been able to truly appreciate all of the love (really, just so much love) within our little family.  Thank you all for sharing that with me, and with each other.

Happy holidays to each of you, and best wishes for a healthy 2014.

Learn more about the caring staff at Family House:  http://www.familyhouseinc.org/staff.html