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Showing posts with label family. Show all posts
Showing posts with label family. Show all posts

Tuesday, 7 July 2015

Happy First Birthday, Joy!

 We were so pleased when Joy’s parents decided to host her first birthday party at Family House! This sweet Arizona family has been staying with us for most of Joy’s life - since she was only 3 weeks old. This tough little girl just got out of an isolation period in the hospital - just in time to celebrate with family and friends. Happy First Birthday, Joy!

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Wednesday, 4 March 2015

Maddie’s Journey, by Jenny DeHart

My daughter, Madison, was 13 when she was diagnosed with cancer.  It was June of 2011 and I took  3 of my children to the doctor to get their Whooping Cough vaccination.  While we were there and after the Dr. left the room, I asked the nurse if it was ok for Maddie to have the shot if she had whooping cough already.  When she went out to ask the Dr. he advised us to go to the ER before having the vaccination just in case.  I waited a few hours and we went after dinner, around 7:30 that night.  After 2 hours and chest x-rays, we found out that Maddie had a massive tumor in her chest behind her right lung, and as it grew it was pushing on her lungs and causing the cough.  We knew within two weeks that the tumor was cancerous, and so our journey began.

On August 5, 2011, Maddie had what we refer to as her "big surgery".  It was a scary day for me, as things drastically changed the day before when we went for her pre-op appointment.  At first I had been told that they would be removing the tumor from her side, under her arm, and no scar would show, and that they were allowing 5 hours for her surgery.  During the pre-op, I was informed that the surgery now was scheduled for the whole day, and that the tumor was wrapped around the arteries to her head and right arm, as well as the nerves to her diaphragm and vocal chords.  They also let me know that they would be opening up her chest to get it out.   I was horrified and they went further in telling me that if they removed the whole tumor, they would have to remove her right arm and she would not have a voice anymore.   I didn't have time to process any of this at all, she was going in the very next day.

About four hours into the surgery, the Dr. called me in the waiting room and told me that the MRI was wrong and the tumor was NOT wrapped around all those important arteries and nerves!!  That was our first miracle.  When I saw my sweet Maddie 6 hours later, she was in ICU with every tube imaginable connected to her, but I saw her right arm, and about 20 minutes later I heard her sweet voice, and I knew that she was going to be ok.

Eight days later, when she was discharged from the hospital, and we began our two hour drive home to Turlock, California.  We were an hour and half away from home, and I received a phone call from her oncologist at UCSF with more devastating news.  The pathology report had come back on the tumor and it showed a very aggressive cancer which indicated that Maddie would need to have chemo and radiation.  They gave her a "small" break after her "big surgery" of one month, before she had surgery to insert a port into her chest, and she began chemo that same day, September 6, 2011.

This is when our second miracle occurred.  We were referred to Family House and they became our second home for the next 6 months.  I say "they" because the people of family house made us feel as though we were home.  The first person we met was Kara.  She did our orientation and had nothing but a smile on her face the whole time!!  She was our first contact in our "new home".  Subsequently, meeting everyone else, John, Joe, Greg, Amy and now Karen,  was amazing!!  Family House became our home, and the people who work there, and the families that stay there are who made that happen.

We needed that miracle because Maddie and I were separated from the other children for the majority of 6 months.  It was very difficult on our our little family.  The staff was so consistent through support, from activities for Maddie, everything they provided in the house, and even just basic conversations, or simple smiles and hugs that helped us get through our day.  They were always encouraging us and always there for us when we needed them the most!  They MADE Family House a home for us, not just a house.

Our third miracle came when the Doctor declared that Maddie was cancer free on February 13, 2012.  She then had her port removed on Valentine's Day.   The only thing that was bittersweet about that news, was that we had to go to our real home.  Of course we WANTED to go home, to reunite with the other kids, but leaving Family House was so hard.  They were by our side through the darkest time in our lives and we had to leave them.

Next week it will be 2 years since Madison was declared "Cancer Free".  She is 15 years old now and thriving in school, actually in all aspects of her life.  We have been given the opportunity to be able to stay at Family House periodically over the past two years for her check ups that will continue for 3 more years, regularly.  It feels good when we get to "go home", and know that we will be welcomed and loved by all our "family" there.

Follow us on Facebook to see the latest on some of our amazing families:  http://facebook.com/FamilyHouseSanFrancisco

Click here to learn more about Family House families:
http://www.familyhouseinc.org/family-stories.html 

Sign up for our newsletters to stay in the loop on all Family House news: http://www.familyhouseinc.org/newsletters.html#newsletterform 

Thursday, 22 January 2015

Family House Staff Spotlight: Jessica Creager

Interview with Jessica Creager, Director of Finance and Special Events

How did you come to be at Family House?
When I first started at Family House in November 1997, as Assistant Administrator, there were only three full-time staff members. I heard about the position through the then-Executive Director, Cliff Berg, who was looking for someone who knew how to do Quickbooks, and I had that experience. I never knew about Family House before I was offered the job, but I've grown to love it!

How has Family House Changed since you first started?
When I first started, we housed 10 families a night, and now we house 34 families a night.  We had only one building; now we have two.  The annual budget has increased from $350,000 to $1.6 million. We were only three staffers, and there's eleven of us now.

What are some of your favorite Family House memories?
The Giants stadium AT&T Ballpark event! We got to celebrate Family House's 30th Anniversary with families from so many different years. It was great to see so many families that I've gotten to know while working at Family House, and to see the continuity.

Also, getting to know Nayiri Torigian, who was a young woman who battled cancer. She and her family, they were just so sweet.  She sadly passed away, but getting to know that family was really important, especially important for me, for when I later went through cancer treatment.  She was inspiring to me.

Working at Family house before my cancer diagnosis gave me so much insight to what was coming. Knowing all the kids and all the families that I'd met actually made me more brave in the face of dealing with the treatments. Treatment wasn't as scary to me because I had known personally, especially little ones, who had faced it with no problems.  So, I figured I couldn't be a total wimp about the whole thing!  [Laughs.]  The great acceptance I felt, having a personal illness, and coming back and being greeted with open arms…  not ostracized, not something strange, since at Family House, it's the norm. I've been cancer-free since 2002, and am now officially cured!

Another great thing about being at Family House has been getting to know Family House founders, The Ablins.  They've been so welcoming to me, kind of treating me like family through all these years.  It's been an honor to get to know them and hear their stories, and how they started Family House, but also how they've done so many other amazing things throughout their lives.

Learn more about the caring staff at Family House:  http://www.familyhouseinc.org/staff.html